For the second time in the past several months I have found
myself wishing for a break from being me.
When I realized I was thinking this and stopped to figure out why, I discovered
it isn’t a break from being me that I want but a break from the difficulties. This time I did not stop with this realization
but analyzed the source of the frustration…
I know this time it was easy to figure out based on timing, but last
time may have been triggered by similar circumstances and I just didn’t realize
it. The root of the discontent with the
problems is not really even the problems themselves. So, the years of learning to live as normally
and productively as possible in spite of daily constant pain has been helpful. The root of the current issue is thinking
about breaks in the first place. It was
spring break. This meant a much
anticipated break from classes (or more realistically a chance to catch up with
coursework), although I still had research tasks. Having worked full time prior to deciding to
go to college, breaks are not something I even expect, so having to work
through spring break is not really that big of deal. The problem: knowing I get a break from
classes on a regular basis and knowing I get a couple of weeks of vacation from
work a year…but NEVER get a break from pain or managing it and the other chronic
conditions. I know I am not the only person
with chronic pain or chronic health conditions. I know the pain and other
issues I deal with are not really that serious in the grand scheme of
things. I am able to compensate and cope
well most of the time, live productively, appear normal--although the new
normal is nothing like the old normal.
Most people would never guess what I live with 100% of the time. I prefer it this way. I prefer to avoid attention. I prefer not to be noticed. This is why I minimize pain and illness and
hide what I am experiencing; however, I still long for a break. Just one day would be nice. But, I do not foresee it ever happening. I participated in a research study on chronic
pain. One of the questions in the
surveys asked about my degree of confidence in various aspects of life that may
be influenced by pain. In general, I am
very confident in my ability to do most of the items in spite of pain. However, there is one item that I always
responded that I was not at all confident of being able to ever do--live life
normally. Can I live life as normally as
possible? Yes, definitely. Can I live life such that no one else would
guess the true situation (and most would think my life is normal)? Most likely.
Can I live normally? Absolutely
not! Why not? It takes way too much time and effort on a daily
basis to manage pain enough to be at my optimal functional capacity and
productive enough to accomplish required responsibilities. Am I being unrealistic in my views? Possibly, but I don’t think so. I do NOT count exercise, healthy diet, relaxation,
quiet time, downtime/hobbies, etc. when considering time involved in pain management
even though each of these is crucial. Why
don’t I consider them? Because these are
items that in my opinion belong in every person’s life as part of a healthy,
balanced lifestyle. So, what do I
count? The other therapies and
treatments: heat, ice, TENS, NMES, medications (and tracking them to ensure
timely dosing and to avoid overdosing, coping with the side effects they cause,
etc.), provider appointments (primary care physician, various specialists, physical
therapist, chiropractor, massage therapist, etc.). Sure, heat or ice or
medications may be needed by anyone temporarily for a minor injury or something;
and yes, doctor appointments will still be necessary…but not the number of appointments
as at present and not the number of providers as at present. I’m sure I probably missed things in my
lists. I was not really trying to be
fully inclusive so much as give a clear example of my perspective and why I
struggle to see myself ever living a “normal” life again. There is a new “normal” and for the most part
I have accepted it even though it gets wearing sometimes.
Instead of looking for a break, I need to remember that God
has allowed the current situation and He has a reason. I need to trust Him and look to Him for the
strength needed to get through each moment of each day. He is faithful and good in all He does!
2 Corinthians 12:6-10 (NIV)
6 Even if I should choose
to boast, I would not be a fool, because I would be speaking the truth. But I
refrain, so no one will think more of me than is warranted by what I do or say,
7 or because of these
surpassingly great revelations. Therefore, in order to keep me from becoming
conceited, I was given a thorn in my flesh, a messenger of Satan, to torment me.
8 Three times I pleaded
with the Lord to take it away from me. 9 But he said to me, “My grace
is sufficient for you, for my power is made perfect in weakness.” Therefore I will boast all the more gladly about my weaknesses, so
that Christ’s power may rest on me. 10 That is why, for Christ’s sake, I delight in
weaknesses, in insults, in hardships, in persecutions, in difficulties. For
when I am weak, then I am strong.
http://www.biblegateway.com/passage/?search=2%20Corinthians+12&version=NIV
http://www.biblegateway.com/passage/?search=2%20Corinthians+12&version=NIV
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