Wednesday, February 1, 2017

7 Months

And, back to the roller coaster of highs and lows.  What a ride.

My left hip is still recovering and rehabbing well after surgery.  I was finally cleared to try running this week! Only in the vortex pool and not in fast current yet, but run nonetheless!  At the same time, I still struggle to stand or sit extended periods of time.  I do great if I keep moving, but quickly run into issues when still.  My right hip has been getting ever more irritable again as the injection continues to lose effect.  I have been grateful that the injection is losing effect more slowly than was the case with the left hip, but it is still hard to have pain levels creeping ever higher, annoying pain keeping me awake at night, ability starting to decrease again. Not sure if being cleared to try running in the pool is actually going to last very long....right hip has a way of taking away new abilities as soon as left hip is cleared to try.  For now, grateful for progress.

Shoulders seem to be competing with each other regarding which one is worse/better.  I can at least write to take notes in class again better.  The shoulders do make sleep challenging and some daily tasks challenging. Interesting how much one takes the entire body and its abilities for granted until something starts to hurt or not work properly.

I had been sent to yet another specialist recently to try to sort out some of the guesses for the ongoing, underlying issues, and to hopefully implement recommendations from some of the other physicians. I very quickly ran into a dead end.  I am still not sure from here.  I am on back-up plans again. At least we had back-up plans this time, though. What is puzzling is how I can have the most normal, healthy blood, but clearly not be either normal or fully healthy.  In other words, more negative blood work, another negative exam, even with lots of affirmative answers to questions.  I asked how much prednisone + maximum dose prescription NSAID + cod liver oil + glucosamine + anti-inflammatory diet + overall healthy, careful lifestyle would have on masking things...and was not really ever given a good answer.  I know prednisone masks things all by itself.  I had a negative exam on left hip when I was pre-op but on high dose prednisone to calm down the first shoulder right after I initially hurt it.  Prednisone will hide the full reality.  That is part of why I got caught by surprise with how bad right hip and left shoulder were when we first started tapering prednisone after surgery last summer.  The prednisone had been masking far more than just the severity of left hip pain.

This may seem random, but please bear with me, there is a point to this.  I have always liked snowflakes.  I was talking with someone recently about the additional meaning of snowflakes to me.  Each snowflake is unique.  Each person is unique.  My body happens to be more of an anomaly.  Snowflakes remind me that this is alright.  This is just how I am, how my body is.  For those who have seen my current Facebook profile photo, it is a paper snowflake I made Christmastime 2015. It is a reminder it is OK to be different, even when it is hard and no one knows how to help me. This also ties into something I shared in a previous post years ago.





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